DNA testing service 23andMe has filed for bankruptcy protection, sparking concerns about the fate of the genetic data of its 15 million customers. The company's move has raised questions about what could happen to the sensitive information in the event of a sale or acquisition.
While 23andMe has assured customers that "data privacy will be an important consideration in any potential transaction," security experts and lawmakers are urging users to take proactive steps to protect their data. The concern is that a new owner could change how the company's data is managed and used, potentially putting customers' genetic information at risk.
For users who want to take control of their data, 23andMe provides an option to delete their information. However, the process is not entirely straightforward, and users should be aware of some important caveats. To delete their data, users need to log in to their account, navigate to the Settings section, and select the "23andMe Data" option. From there, they can click on the "View" option, scroll to the "Delete Data" section, and select the "Permanently Delete Data" button.
Users will then receive an email from 23andMe with a link to confirm their deletion request. It's worth noting that the data removal process may take some time, as the website is currently experiencing slower-than-usual performance due to a surge in users attempting to delete their data.
Before deleting their data, users have the option to download a copy of their information. However, 23andMe's privacy policy states that the company will retain certain information, including genetic data, date of birth, and sex, as required for compliance with applicable legal obligations. Additionally, the company will retain limited information related to account and data deletion requests, including email addresses and communication records, for a limited period of time.
Users who previously opted to have their saliva sample and DNA stored by 23andMe can also revoke their permission by going into their account settings page and navigating to Preferences. Furthermore, users who agreed to allow 23andMe and third-party researchers to use their genetic data and sample for research can withdraw their consent from the Research and Product Consents section in their account settings.
It's essential for users to check in with their family members and encourage them to take similar steps to protect their data, as the sale or misuse of genetic information can have far-reaching consequences for relatives. Users are also advised to check in with their friends to ensure that all loved ones are taking steps to safeguard their data.
The bankruptcy filing and subsequent concerns over data privacy highlight the importance of users being proactive in protecting their sensitive information. As the use of DNA testing services continues to grow, it's crucial for companies and regulators to prioritize data privacy and security to prevent potential misuse.
In the wake of 23andMe's bankruptcy, users are left wondering what the future holds for their genetic data. While the company has assured customers that data privacy will be a key consideration in any potential transaction, the uncertainty surrounding the fate of the data is a stark reminder of the need for robust data protection measures in the biotech industry.