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With 23andMe's recent filing for bankruptcy, users of the DNA-testing company are growing increasingly concerned about the security and ownership of their genetic data. As the company navigates the Chapter 11 process, users are advised to take proactive steps to protect their personal information. Fortunately, 23andMe allows users to delete their accounts and remove some of their data from the company's database.
The process of deleting one's 23andMe account is relatively straightforward. Users can log into their account, select the "Settings" option, and scroll down to the "23andMe Data" section. From there, they can request to download their data and initiate the account deletion process. However, it's essential to note that deleting one's account is an irreversible action, and users will permanently lose access to their data once completed.
One of the significant concerns surrounding 23andMe's bankruptcy is the potential for user data to be sold to or accessed by other companies. While 23andMe claims to anonymize genetic data and store it separately from personally identifiable information, there is still a risk that this data could be compromised. Users should be aware that deleting their account will not remove all of their data from 23andMe's systems. According to the company's privacy disclosure, genetic information, date of birth, and sex will be retained for an undisclosed amount of time to comply with legal obligations.
Some users have taken to online forums to suggest "scrambling" their data before deletion by replacing personal information with false equivalents. However, it's unclear whether this approach would be effective, as 23andMe did not provide clarification on what specific data is retained or deleted during the account deletion process.
In addition to deleting their accounts, users should also be aware that their genetic samples will be destroyed if they previously opted for storage. Furthermore, while users' data will still exist in any scientific studies they consented to, it will not be used in future research projects.
As 23andMe navigates the complexities of bankruptcy, users are advised to remain vigilant and take control of their personal data. By following the steps outlined above, users can proactively protect their genetic information and maintain some level of control over their data in an uncertain future.
It remains to be seen how 23andMe's bankruptcy will impact the broader genomics industry, but one thing is clear: users must take an active role in protecting their personal data in the face of uncertainty.
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